Strength (and hope) in numbers
Hi, everyone. Lucky here, just filling in for Kate for a little while.
You know, some days it seems everything’s about numbers and statistics. Even in commercials, we’re always hearing that 9 out of 10 dentists like a particular gum (maybe that last one just doesn’t like gum at all), or that a soap is 99 and 44/100s percent pure, or that the orange-scented household cleaner under your sink kills 98% of germs. We see numbers all the time, and they’re sold as concrete and reliable ways to understand things. “You can’t argue with numbers,” the thinking seems to go. We can even paint pictures with numbers, and we call that art “statistics,” and we treat it reverently as a teller of truths.
The problem with that way of thinking is that numbers and statistics don’t always tell the whole story. Statistics are useful in presenting trends and the big picture, but they really do a terrible job of describing individual experiences. And that’s a problem for my friend Kate, and others who have been diagnosed with cancer: all too often, those statistics are used to try to predict what a single person’s experience will be like in an attempt to answer the natural questions that patients and their loved ones have. It’s particularly difficult with pancreatic cancer, which has some very scary numbers associated with it.
Kate has written about this before, and I thought now would be a good time to revisit that idea – that the numbers are simply numbers, each arrived at by aggregating and then flattening the unique experiences of many, many individuals. It’s such an important lesson to learn that I’m actually going to suggest a short additional reading – an article which has been called “the wisest, most humane thing ever written about cancer and statistics.”
The reading is a short article written by the scientist and author Stephen Jay Gould upon his diagnosis with abdominal mesothelioma, a form of cancer with a median survival rate of eight months. Upon encountering this number, Gould took it upon himself to translate into layperson’s terms the very meaning of median, and infused the term with hope instead of looming dread.
If you do nothing else today, go read “The Median is NOT the Message,” by Stephen Jay Gould. It’s illuminating, it’s inspiring, and it’s hopeful.
[Gould passed away in 2002, twenty years after his diagnosis]
May 22nd, 2008 saat: 8:10 am
There are so many people pulling for you, and even though I don’t know you personally, I do believe that you are one of the few who can beat the numbers. You are such an inspiration to so many. Stay strong, and never lose hope!
May 23rd, 2008 saat: 6:13 pm
I also don’t personally know Kate, but I care about her and pray for her all the time. I am a PC survivor, and I have definitely beat the odds. Please let her know that I send best wishes for her quick recovery. Blessings.
May 27th, 2008 saat: 2:20 pm
Lucky, please pass on to Kate our well wishes and hopes that she’s doing okay. Your writing is really inspiring and that article you linked is a wonderful thing to read, for someone with cancer, or supporting a loved one or friend. Kate doesn’t know us, but we think about her a lot and wish we could tell her how inspiring she is to us and how much hope she gives us.
Fondly,
Dana
May 28th, 2008 saat: 2:16 pm
Just wanted to let Kate know that I am thinking of her! I hope that if this is a down time – this little note brightens her day!
May 29th, 2008 saat: 6:47 am
Hi Kate,
I think of you often since reading your article in “The Navigator”. Sending my best thoughts and wishes to you. Stay strong!!
Cindy
May 29th, 2008 saat: 4:38 pm
Hi Kate-
I’ve been thinking of you and wishing you the best. Keep fighting and stay strong. You’re in my prayers every day. Lots of love- Melissa
June 3rd, 2008 saat: 5:42 pm
You’ve never been average and we don’t expect you to start now. Stay positive.
-bob..
June 12th, 2008 saat: 8:29 am
Hi Kate, Hi Lucky,
I’d just like to hear about you!
I’d like to read again your lines or just to know something about you!
I am thinking of you since a couple of days I first read your blog! Keep strong!
Andrea