Comments on: Patient Voices http://www.katethaxton.com/survivingpc/2008/09/19/patient-voices/ A first-hand look at the good, the bad, and the ugly about pancreatic cancer. Mon, 02 Aug 2010 06:19:16 -0600 hourly 1 http://wordpress.org/?v=3.0 By: Susan http://www.katethaxton.com/survivingpc/2008/09/19/patient-voices/#comment-891 Susan Fri, 10 Oct 2008 02:35:42 +0000 http://www.katethaxton.com/survivingpc/?p=126#comment-891 Hi Kate, I hope all is well with you. I feel a connection to you not only because of what we're going through, but also because we are on nearly an identical timeline. Thank you for your encouraging words. I am happy to say that after the even though the 2nd cycle of Xeloda really wiped me out, I since recovered and am happy to report it is working good for me. I'm in the 3rd cycle and with a reduced dosage, the side effects so far are better. It would be great if we could meet up some day, somehow. I pray for you every day. Susan Hi Kate,
I hope all is well with you. I feel a connection to you not only because of what we’re going through, but also because we are on nearly an identical timeline. Thank you for your encouraging words. I am happy to say that after the even though the 2nd cycle of Xeloda really wiped me out, I since recovered and am happy to report it is working good for me. I’m in the 3rd cycle and with a reduced dosage, the side effects so far are better. It would be great if we could meet up some day, somehow.
I pray for you every day.
Susan

]]> By: Kiki http://www.katethaxton.com/survivingpc/2008/09/19/patient-voices/#comment-849 Kiki Wed, 24 Sep 2008 12:23:46 +0000 http://www.katethaxton.com/survivingpc/?p=126#comment-849 Hi Kate, Thank you. The thing I learned when first diagnosed was that this cancer has a stigma attached to it that so does'nt fit most of us. I don't know how many times I was asked 'how much to do you drink?' by doctors assuming my "idopathic Pancreatitis" was all about my closet swigging LOL. It was so funny because I picked up on this right away and I was so desperate to find out what the heck was wrong with me that I would get all dressed up, dust off my old Gucci shoes and bag, every time I went to see my Gastro doctor - so afraid he had some image of me swigging the cool aid all day in my closet. I so wanted to erase that image and get him focused on finding out why I developed this "idopathic Pancreatitis" at age 43. I never was able to get a diagnoses at home in West Palm; drove up to MD at JHH and got diagnosed in 1 day. Like you guys, we drove around in circles not really knowing what to do for a few hours. This cancer needs to see our faces; see we are not in our 80' or alchoholics. Thanks Kate Kiki Hi Kate,

Thank you. The thing I learned when first diagnosed was that this cancer has a stigma attached to it that so does’nt fit most of us. I don’t know how many times I was asked ‘how much to do you drink?’ by doctors assuming my “idopathic Pancreatitis” was all about my closet swigging LOL. It was so funny because I picked up on this right away and I was so desperate to find out what the heck was wrong with me that I would get all dressed up, dust off my old Gucci shoes and bag, every time I went to see my Gastro doctor – so afraid he had some image of me swigging the cool aid all day in my closet. I so wanted to erase that image and get him focused on finding out why I developed this “idopathic Pancreatitis” at age 43. I never was able to get a diagnoses at home in West Palm; drove up to MD at JHH and got diagnosed in 1 day. Like you guys, we drove around in circles not really knowing what to do for a few hours. This cancer needs to see our faces; see we are not in our 80′ or alchoholics.
Thanks Kate
Kiki

]]> By: Brian http://www.katethaxton.com/survivingpc/2008/09/19/patient-voices/#comment-837 Brian Sat, 20 Sep 2008 16:17:54 +0000 http://www.katethaxton.com/survivingpc/?p=126#comment-837 Thank you for giving your voice to the NYtimes article. When I become tired from my work doing cancer research, I need to be reminded why I do it. Thank you for giving your voice to the NYtimes article. When I become tired from my work doing cancer research, I need to be reminded why I do it.

]]> By: Harris http://www.katethaxton.com/survivingpc/2008/09/19/patient-voices/#comment-831 Harris Sat, 20 Sep 2008 01:03:25 +0000 http://www.katethaxton.com/survivingpc/?p=126#comment-831 As much as your blog gives voice to your story, it was very moving to hear your actual voice tell it, and to see some pictures of your life and family. As much as your blog gives voice to your story, it was very moving to hear your actual voice tell it, and to see some pictures of your life and family.

]]> By: Michelle http://www.katethaxton.com/survivingpc/2008/09/19/patient-voices/#comment-828 Michelle Fri, 19 Sep 2008 17:16:24 +0000 http://www.katethaxton.com/survivingpc/?p=126#comment-828 Thank you Kate for participating in that forum. It was great to have the spotlight on this cancer that rarely gets the attention it deserves. It says a lot about you that you are willing to shine your light publicly. Thank you Kate for participating in that forum. It was great to have the spotlight on this cancer that rarely gets the attention it deserves. It says a lot about you that you are willing to shine your light publicly.

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